Jesy Nelson calls out 'postcode lottery' in baby screening fight
The singer revealed in January her twins, Ocean and Story, had been diagnosed with SMA Type 1
Published April 04, 2026
Jesy Nelson has continued to share updates about her twin daughters' health in a new post shared on Friday.
The singer, 34, revealed in January her now nine-month-old twins, Ocean and Story, had been diagnosed with SMA Type 1, a rare muscle-wasting condition.
The diagnosis means her daughters are unlikely to be able to talk and will require specialist equipment to help them breathe at night, as well as feeding tubes.
Despite the UK's National Screening Committee rejecting calls to introduce checks for another muscular disease in January, on Wednesday Wes Streeting announced plans for more than 400,000 babies to be screened for the condition from October 2026.
However in a new update, Jesy told fans there is a long way to go as only certain areas in England will be carrying out the tests on newborns.
'It is bit bittersweet because basically they are only doing it in certain areas of England, so if you do not live in that certain postcode or part of England then your baby won't be tested for SMA, which is really sad', she explained.
'It's essentially a postcode lottery for your baby which shouldn't be the case. All babies lives matter, so as amazing as it is there is still a long way to go in terms of that.
'I'm going to keep pushing and trying as much as possible to get this so it is in all areas of England and then also the petition you all kindly signed getting 100,000 signatures is now going to be debated in parliament which is just amazing.
'That is all down to you guys so thank you so so much, you're incredible and I am so appreciated of all the support and love, thank you so much.'
At the start of the video, Jesy celebrated the 'major milestone' and said she is 'really proud' how far the campaign has come.
The Little Mix star welcomed her daughters Ocean Jade and Story Monroe prematurely in May 2025 with her ex-fiancé, Zion Foster.
Her update comes after she visited the newborn screening lab in Scotland, following the country becoming the first part of the UK to test for the rare condition affecting her daughters.
